Before biomed and recovery. This was the best I could get all the while calling his name repeatedly to get him to look at me. |
After biomed and recovery - This photo courtesy of Arne Kaiser, my son's wonderful teacher. This was taken at school. |
So shall we all "Light it up Blue?". I won't say how I really feel but I will say "SCREW THE BLUE!". As a newly diagnosed parent I "walked" for Autism Speaks. I raised a lot of money. And then I found out the money primarily goes to the big wigs' salaries (6 figures!) and marketing/PR. Yes, do we need the word out? Yes, do we need activism? But I'm sorry, we need HELP! We need grants for supplements, Dr. visits to people who know how to successfully treat Autism, we need help paying for therapy, WE.NEED.RESPITE!!!!! If you are considering donating (and I thank you if you are) please look at organizations like TACA (local chapters in many states), NAA or local Autism support groups that give to the families, not spend money on genetic research and pay their top dogs hundreds of thousands of dollars per year. The info is out there, look into how they spend their money. You will be astounded. And maybe like me you make even feel a little bit taken. If you want to do real research, look at the effects of toxins in our world. Look at what supplements HAVE been helping our kids. Look at the recovered children, find out what they did and study that.
We are not alone thankfully. More and more parents are educating themselves on what they can do to help their child. We are not helpless victims to a purely genetic condition. Autism CAN be treated, recovery CAN happen. Don't be overwhelmed, be EMPOWERED!!! Parents have a huge responsibility here but with that is great control. You can help your child. It is not easy, it is not cheap, but it is possible. You will meet a lot of haters but you will also meet the strongest parents. Parents who will spend their night hours (even though many times we are exhausted ourselves) emailing you back about test results, supplement recommendations, therapy options, how to navigate your state services, IEP help, etc. We spend our very limited free time helping others because we are a family. My online group of Autism parents is one I am constantly humbled by. They are courageous, knowledgeable and we at our core, just want success for YOUR child as much as we want it for our own. I cannot tell you the tears I have shed over an accomplishment after a recommendation I gave worked for someone else's child. Or the tears I've shed when a dedicated parent HAS done everything and yet little to no response that time. We have to stick together because we've been hung out to dry by our government and society. They want to cover up the real causes of Autism because they line the pockets of those who are tasked with regulating them. So until that changes we have to stick together, share what works, encourage each other.
So, plenty of us are Autism "aware". We need Autism empowerment. You only become aware when you are thrown into our club. But I must say that now that I'm here, I'm in very good company. You want stuff changed, you want research done, you want out side of the box thinkers, then go find yourself an Autism mom, especially a hard core biomed mom!! She can probably spout the methylation cycles, talk to you about the MTHFR gene mutation all while making some kick ass GFCFSF paleo pancakes and a green smoothie chaser. She can probably look at your skin and tell you that you need some liver support and ask you about your poop. Forget Cher, after the apocalypse I can guarantee you us Autism moms will be around! Hey, we know how to detox just about anything! ;)
So while the hype is out there to "Light it up Blue" just realize that Autism is very real. And until we make some serious changes, it is coming soon to a child near you.
4 comments:
Very well said. You are amazing!
I couldn't agree more Terri! We need action! We need to change the paradigm. Parents need to know kids can RECOVER!
Loved this! I had to read it over and over again b/c I felt like I had found my double. Best of luck to you and your son!
Fantastic post! I love how candid you are in your writing. You're an inspiration. Keep up the great work!
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