Monday, March 1, 2010

Respen-A Q & A

I apologize to all my blog followers, I have been very ill for well over a week now. I am feeling a little better but realize now too much stress and taking too many things on really have negatively impacted my health. So, I will be reducing my online time overall. I will still keep this blog going, don't get me wrong, but I have to reduce my work load at this point.

But, over the course of the week and a half or so, some great questions have come in about Respen-A and thankfully, a developer of the product, Elaine De Lack, has been reading my blog and the comments and have been answering them. Who better to get this info from but from the main person, so thank you Elaine! I am going to post the questions here so everyone can see them, not just those to read past posts and their comments so here goes.

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Q: Do you need a camera/video on your computer to participate in a webinar or do you just type your questions?

Also...if your child is using respen-a do they have to stop taking vitamin D3? (it is in my child's multi) Thank you!

Sorry...one more question. What type of calcium (and how much) do you give your son with the respen-a? Thank you! Walker

A: Hello Walker,

You do not need a webcamera on your computer to participate in the webinar. You can simply listen using your speakers and ask questions using a microphone that is attached to your computer or you can type in your questions or you can call the call in number that is given to you and you can listen in on your telephone and ask questions via your telephone as well. If you hae unlimited long distance this is the best so that you don't get feedback through your speakers. We encourage everyone to ask questions, or share comments as we are learning from you as well. In a universe that is in constant motion, everything is constantly changing, so my motto is, the day I think I know it all is the dumbest day of my life.

We had our first webinar on February 23rd and it went well I thought but we had trouble getting through the slides once someone asked a question. We are going to record and archive these webinars on our website so that people can go back and listen or people who weren't able to attend the webinar can still listen to them. So to make the recordings flow well, we are going to go through the slide presentation at the beginning of the webinar and then open it up for questions and it can be any questions, they don't have to be on the subject the slide presentation was on. Dr. Starr will be available as well as myself for questions.

The other thing I realized is that we need to break the slide presentations down thoroughly dissecting each symptom or topic. Many of the trends in medicine have come about from a marketing campaign because of a new patent and that doesn't necessarily mean they will or are producing the best health outcomes. I plan to expose these trends as well as they pertain to the various topics we will be covering. This way people can make informed decisions as to what treatments they want to pursue. So as for your question regarding vitamin D3 which is a topic we will be discussing during one of our webinars that came about from the new patent for cholecalciferol years ago, the answer is no. The amount of vitamin D3 which is usually about 400 IU is fine. It is the large doses of vitamin D3 that can decrease the effect of Respen-A.

As for your calcium question, we are going to discuss in depth the calcium issue this Tuesday, March 2. If you would like an invitation to the webinar, just email me at elaine@edmsllc.com and I will email you an invite. But in short, the answer to your question is we have found most people do the best with calcium carbonate but there have been a handful that need the calcium citrate instead. Because the majority do the best with the calcium carbonate, that is what the pharmacy sends out for free with the first prescription of Respen-A. We are working to get this in a capsule form so that people can open the capsule and mix the powder inside the capsule with applesauce or pudding or something their child likes to eat. We had this supplement in a capsule originally but it also contained copper and zinc. We don't want to contribute to the high copper levels autistic children have so we are getting a new formulation made that doesn't have copper or zinc but it will have some magnesium in a 4;1 ratio of calcium to magnesium. How you know if your child is absorbing the form of calcium they are using is if they display increased aggressiveness or irritability then they most likely aren't absorbing the calcium well and you should switch to another form of calcium such as calcium citrate. If it was the calcium you should see an improvement in the aggression and irritability within 1-2 days of changing the calcium. If your child is happy, in a good mood but showing hyperactivity, this usually isn't a calcium issue, but rather a sign that the dose of Respen-A is too high and cutting the disc in half usually resolves this.

Elaine DeLack

A: Hi Walker, as my own note, we've been using the liquid calcium and the powdered magnesium citrate from New Beginnings Nutritional for my son and he is doing wonderfully on them both. For more info on the calcium, click HERE and for more info on the magnesium, click HERE. And, since the flu has been running through our home, I have once again pulled out the vitamin D to supplement my son to try and fight this bug as he has now shown signs of having. This is day 2 of large dose supplementation and have not noticed a regression from our Respen-A gains. I do not intend to make this a long term thing but I also believe that D3 can be a powerful ally against the flu so I am using it on him now. I will tell you how it goes in the next few days. Thanks! Terri

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Q: Are these webinars on the Autism Action site? Or will my e mail request be acceptable? Tawyna

A: Hi Tawnya,

The webinars are done through our GoToWebinar (GoToMeeting) so you will need to send me an email requesting an invitation. My email is elaine@edmsllc.com In the very near future we will have a webinar page on our website where you can request an invitation and listen to recorded archived webinars. Our website is www.respen-a.com

By the way, we will be presenting at the AutismOne conference in Chicago May 24-30.

Elaine DeLack
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Q: I can't wait to hear more about this. If i get this prescribed, could I ship with you or can they ship to AZ now? Shari

A: Hi Shari, yes we finally can ship into AZ. There are only 5 states we can't ship into now, and they are Vermont, Arkansas, Kentucky, Louisiana, Nebraska, and North Carolina. We are working to get a pharmacy on board that is licensed in these states as well. To be licensed in the various states the pharmacy has to take the law exam in each state and pay a fee. Unfortunately to expand to get Respen-A available in more states, the pharmacies demanded a higher price or they weren't going to continue to make the product. The discs are very time intensive to make. So the price has gone up to $82 for a month's supply. I am working on a means to make the discs easier and so maybe in the future we will be able to get the price to come down some. I am limiting the number of pharmacies that make the Respen-A so that I can better insure the quality of the product.

Elaine DeLack

A: Hi Shari - here is the name and phone number of the pharmacy that can ship to AZ now:

Key Pharmacy, 206-878-3900. They are in Seattle. Terri
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Q: Hi- I am the mom of a 7 yo with Aspergers- we see dr. Rossignol in Melbourne Fl-- and I just spoke with Elaine this evening about Respen-A. It's really heartening to hear of positive results. I am really hoping for improved social behavior and lessened sensory issues. I am considering relocating to Tuscon and was told that I have to live in the Foothills school district. I was hoping you might know something about the schools in this area? Also, Syndion is not on my list of "suppies", what is it? Thanks!
Terri

A: Hi Terri! I don't know anything about school districts in the Tucson area, I am sorry. If you need info on Phoenix area schools I can give you some info. Syndion is a comprehensive multivitamin, multimineral designed for kids on the spectrum. It helps normalize sulfation and methylation pathways and help the body detox. Click HERE to read more. It is formulated by Jim Adams out of ASU, I love this product for my son!

2 comments:

walker said...

Thank you SO much Elaine and Terri, those are wonderful and extremely helpful answers...I so appreciate you taking the time to help me.

Terri, I hope that you get feeling better...it is so hard being sick, take care.

walker said...

Hi Terri...I have been looking at the calcium and magnesium supplements you linked me to and they look great. Do you mind telling me the dose of each that you are giving to your son and also how you are giving them to him? Do you just give them once a day with breakfast? thank you!