So some who have been following this blog may know about our issues with L-Carnitine and Acetyl L-Carnitine. When we tried to introduce these supplements, after 3 days of use my son began to smell very strongly of fish. We started with L-Carnitine and then later switched to Acetyl L-Carnitine, same thing occured with both forms. After some talking to Dr. Woeller and a quick internet search we came up with this HERE. Once again, it comes down to enzymes. So, after our success with Respen-A for almost a year and the tanning that we are seeing as a sign of enzyme progress, we decided to reintroduce Carnitine but very, very slowly. We did 250 mg every 3rd day. By the 2nd dose we were seeing lots of emotional outbursts, screaming "NO, I DON'T WANT TO" when we made requests, craziness. That sealed the deal and we will rest knowing we tried yet again. The last thing we wanted to do was flare clostridia since that had happened in the past when we used Carnitine.
That was last week. This week we are making the transition to Ubiquinol (read more about Ubiquinol HERE) instead of the CoQ10 we were using. This morning is the first dose so we shall see what happens.....always interesting around here. But, We always have to be learning and trying new things to maximize our kiddos' healing I think. I came back from the DAN! conference with a few new tidbits and wanted to see if anything I heard would make a difference. I will keep the blog posted on what changes we see (if any) with this new form of CoQ10.