Sunday, August 10, 2008

Matthew's update

So, after our trip to see Dr. Woeller in June, we've had "homework" to do. We've had to do lab work and start our Methyl B-12 shots. We actually bumped up the shots to every other day instead of every 3 days. That is going very well. Anyways, we got all of Matthew's labs done and the results came in a couple of weeks ago. We had our follow up call on Thursday to go over everything. As expected, Matthew has yeast, clostridia bacteria, and some viral exposure, both recent and long term. Dr. Woeller said Matthew has leaky gut and leaky brain. Basically the immune system is fighting his own body and he has brain inflamation. And his gut is not able to break down all the proteins in the food he eats so the large undigested proteins wreak havoc on his body and brain. He was also high in oxalates. Those are the things that bind with calcium and eventually can form the crystals that cause kidney stones. Oxalates can come from food (spinach, peanuts/peanut butter, and a whole host of other foods), can be a by-product of yeast or can be produced as a result of a genetic defect. Matthew's seems to be from yeast and food. We were recommended to put him on a low oxalate diet which will further restrict his food choices. Here's the run down on the treament plan: Treat yeast with Nystatin (probably for about 3 months), after starting Nystatin for 3 days then add Flagyl for the Clostridia bacteria. 3 days later add in VSL #3 as a heavy duty probiotic to help the good bacteria take control of his gut again. 3 days later add in culterelle, another probiotic that also is good at fighting the clostridia bacteria as well. 3 days later add in Theanine and then 3 days later start GABA, both for anxiety. 3 days later add in Cal/Mag citrate to help bind the remaining oxalates so the body can get rid of them and then finally add in Sonic Cholesterol since Matthew had low cholesterol and did show an intolerance to eggs. On top of this we are to cut back on high oxalate foods, that process can cause some negative behavioral effects as his body "dumps" the stored oxalates. Plus we will be having yeast die off when we start Nystatin which can be ugly too. It should be interesting. I am just so excited to have a plan and start. And the great news is that none of Matthew's issues were genetic in nature. He probably has a mitochondrial dysfunction though. The mitochondria are the power houses of the cell. What they have shown in the Hannah Poling case is that because she had a "rare" mitochondrial disorder, she was predisposed to injury from her vaccinations and that caused her autism. What the vaccine companies are trying to say is that hers was a very rare case. But what doctors are finding is that mitochindrial dysfunction (not disorder) is actually more common than it should be today. You are only supposed to have this problem due to genetics, meaning mom/dad have this too. What they are seeing is more kids on the spectrum have mitochondrial problems WITHOUT mom or dad having them too. Something in our environment is changing their mitochondrial function and structure. So, bottom line is Matthew's gut and brain are messed up with yeast, bacteria and viruses. But we will be working hard to fix him. And, there is great prognosis for getting these things taken care of. It could be interesting in the next month but we will get through.

5 comments:

AZ Sunshine said...

Wow. I can't believe how much more you know now. Thanks for sharing. You are an amazing mom and Matthew is a tough little cookie! Keep up the good work.

oaklandlawyer said...

Unbelievable. I dont know how you manage all this, I can barely get my laundry done on schedule.

You amaze me and I'm just glad to be able to say I know you.

Shari Goodman said...

Nice to finally run into you! We just finished the Nystatin and Flagyl. Flagyl was very hard on him. He would all of a sudden turn grey and throw up then go to sleep. He would wake up fine. Glad it is over though. Good luck with it all. It is scarry yet excited to see results. I love the B12. We take them daily now and they are the miracle for Tate. See you at school!

M_&_Em's_Momma said...

Elan, I don't know how I do it either, charts, charts, charts oh and lists too! You know me, Type A all the way baby! Remember when you said "Over achievers shouldn't be stay at home moms because they take too much on in their "free" time?" Well, the over achiever part at least is helping Matthew!!! Thanks for the kind comments, you make me want to cry. I am glad to say I know you too woman, for the past 2 decades plus!!

M_&_Em's_Momma said...

Shari, it was great to meet you too!! I am sorry the Flagyl was so hard on him. That is no fun. It IS so exciting to see the results. He comes out with so many funny things these days that he says. He just cracks us up! He's become quite the ham for attention. See you today at LIFE!