This is the current posting that went out to parents today..2. Door is OPEN- 5th Highest Overall Rated Idea for Change in America.. Posted by: "Michael E. Robinson, Sr." firstname.lastname@example.org peace4kids Thu Dec 25, 2008 11:54 pm (PST) Listmembers, Throughout the last few weeks we have had several what I would call 'shocking' reports regarding the treatment of children with disabilities and as well the treatment and retaliation of those who try to help them. The CNN reports of time out rooms and cells should concern EVERY parent regardless of whether their child is disabled or not.. if for you have not looked at this site I believe you should, however awful it may be it is the horrifying truth for the children in our schools...regardles s of disability or none. http://www.cnn. com/2008/ US/12/17/ seclusion. rooms/index. html After viewing the article and seeing the video of the father of the child from GA. that died in one recently, it is not a 'fun' subject to discuss - but discussion must take place and action after such. The other very shocking news came to you in a post recently.. Regarding an Arizona Advocate that is facing 150 plus years prison in a retalitory action against him due to the fact he was a 'winning' advocate with not only a record of due process wins. The arresting of him with guns drawn is simply wrong. Haven't we had enough ? So, many parents and those on the Autism Spectrum have responded rallying the " Autism Reform Act of 2009 " , And relief for those that have been or are in Special Education or Disabled ". This is not a replacement for the ADA but I personally think the "ARA" should be an ACT that is reauthorized and continued after it has been made acceptable to the President Elect and the Legislative branch that will ratify and fund it. THE ACT IS CURRENTLY IN 5TH PLACE IN THE NATION FOR ALL IDEA'S FOR CHANGE IN AMERICA. In the 'Education' category it is 1st by almost 600 votes and almost 800 votes over the 3rd place idea that will also make it to the final round. We have made a statement as not only parents but also those on the spectrum or with other disabilities. I believe strongly that the 'force' of the movement of parents must at some point, and I believe the time is NOW, join together with the large population of those on the spectrum or disabled that are Adults. This is for them, and if we are going to speak for them they not only deserve a 'say' in it, they are needed for input that has already been crucial in revising the proposal in ways I believe will be more acceptable to the President-Elect and to the entire community that needs to merge..those with disabilities on the spectrum or not, and those that are parents of disabled children and are going through the education process. By looking at the 'finished product' or person that has gone through special education we get insight that we could only get from someone that has actually been in the students chair, been denied something unfairly as an adult such as SSI, being put on waiting lists for Medicaid waivers, and so on. How long should we just sit here and say " I don't like this part" " We can't fund this " (We've funded bailouts totaling a trillion plus when you include the fannie/freddie and we've also spent just as much/more on war) " This should be changed " (well email me or respond with some constructive input for a change or addition to the the ACT) "I just don't have time to read this post or concern myself with this because..... ..." (Our children and those that are older kids of ours come first, take the few moments and do what you can to make the difference.. Please) " I don't think the Aspies and others that are adults can make these kind of decisions " ( Believe me they can and already have !) So lets open our minds to the possibility of real " Change " , the kind that counts. Regardless of what political party we follow, regardless of what beliefs we have that are different " I like the GFCF diet " " I think HBOT is the way to go " " I think chelation is all that works " " All kids need a 1:1 aide (this may be close to very true for the younger kids on the spectrum and with other disabilities) ". REGARDLESS.. . we must join together and forget about indifferent feelings on subjects that will result in absolutely NO funding unless we come together in a strong accord and make something happen. This is not 'my' act.. as I've said before it belongs to the people, made by the people, and for the people. I'm just a concerned dad with a big mouth that types fast (but I can say enough is enough, time for change NOW) ! No more kids need to die, no more adults on waiting lists due to underfunding the Medicaid Waiver program, no more kids in unsafe inappropriate environment pulling out their hair as the one young girl did in a time out room.... The bottom line is we have an OPEN DOOR now.. we have attention and need to go after it. Please email me offlist at Peace4kids@. .. and let me know your input. It all counts.. some are major ideas and some are compiled with 'like' ideas, all of which will appear in some shape or form on the final proposal. The input I am now getting from the Adults on the spectrum is quite large. We have several 'groups' ....and in the last 12 years I have not seen unity at all within them.. lets as parents be patient and listen to our kids...let them give input..as Adults they have valuable information. .And those on the spectrum or with other disabilities. . try to keep an open mind as far as the possibility we now have as the 5th highest rated idea in America and Number 1 in Education a basic 'given'. Those who haven't supported.. please take the time to register and support - your input matters. http://www.change. org/ideas/ view/accept_ and_sign_ the_autism_ reform_act_ o\ f_2009 Michael E. Robinson, Sr. The Office of Advocacy for Autistic Children(soon to be Individuals) .
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